UNC Health Care is pleased to have joined the Cure HHT Team by hosting its 1st Annual “Walk to Cure HHT” 5K walk/run benefiting The HHT Foundation International, Inc. in Chapel Hill, NC, on Sunday, May 18th.
Net proceeds from this event will benefit the HHT Foundation. We are seeking the support of walk/run participants as well as those who lead independent fundraising efforts to help us reach our goal of raising $10,000.
This is an exciting time to join the fight to cure HHT and to take on the challenge of this fundraising endeavor. In addition to fundraising, we are committed to raising awareness for HHT. Our efforts, together, move the needle closer to finding the cure for HHT.
What is HHT?
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome
, is a medical condition unfamiliar to most. Nonetheless, this genetic blood vessel disorder affects about 1 in 5,000 people worldwide. It poses daily quality-of-life challenges to its sufferers, given the disorder’s symptomatic excessive bleeding from the nose, mouth, tongue, gastrointestinal tract, lungs, skin and other organs.
Who is the HHT Foundation?
The HHT Foundation International, Inc. is the only organization advocating for research, education and legislation for HHT. The mission of the foundation is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
We need your support to move the needle together to cure HHT. Our goal for this event to raise $10,000!
Raise Funds/Donate to HHT Foundation
by clicking on the "Make a Donation Button" at the top of this page
: Sunday, May 18th
: Southern Community Park
* South of and adjacent to Southern Village neighborhood, off Hwy. 15/501 South in Chapel Hill)
: Adults: $20 / Children (under 12): $10
* Fee increases as race date approaches. See registration link.
Dr. Charles Burke
UNC Health Care is Helping HHT Patients Locally
Given around 1,700 people in North Carolina alone have HHT, in March 2011, UNC Health Care was pleased to be named the nation’s 12th HHT Center of Excellence by the HHT Foundation International. In the past three years, eight UNC School of Medicine departments, and one School of Dentistry division have partnered to offer comprehensive, multi-disciplinary HHT treatment. UNC Health Care is proud to support the HHT Foundation’s research and awareness efforts.
Cure HHT Team is a grassroots fundraising community
with campaigns of all shapes and sizes benefitting The HHT Foundation, International.
For more information about the HHT Foundation please visit www.hht.org
For event related questions, contact Laurie Birdsong (919-966-5469 / firstname.lastname@example.org