Welcome!


UNC Health Care is pleased to have joined the Cure HHT Team by hosting its 1st Annual “Walk to Cure HHT” 5K walk/run benefiting The HHT Foundation International, Inc. in Chapel Hill, NC, on Sunday, May 18th.


Net proceeds from this event will benefit the HHT Foundation. We are seeking the support of walk/run participants as well as those who lead independent fundraising efforts to help us reach our goal of raising $10,000.

This is an exciting time to join the fight to cure HHT and to take on the challenge of this fundraising endeavor. In addition to fundraising, we are committed to raising awareness for HHT. Our efforts, together, move the needle closer to finding the cure for HHT.

What is HHT?
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is a medical condition unfamiliar to most. Nonetheless, this genetic blood vessel disorder affects about 1 in 5,000 people worldwide. It poses daily quality-of-life challenges to its sufferers, given the disorder’s symptomatic excessive bleeding from the nose, mouth, tongue, gastrointestinal tract, lungs, skin and other organs.

Who is the HHT Foundation?
The HHT Foundation International, Inc. is the only organization advocating for research, education and legislation for HHT. The mission of the foundation is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

We need your support to move the needle together to cure HHT. Our goal for this event to raise $10,000!

Register for the Race: Click here for Race Registration

Raise Funds/Donate to HHT Foundation by clicking on the "Make a Donation Button" at the top of this page

Event Details
Date: Sunday, May 18th, 1pm
Location: Southern Community Park
* South of and adjacent to Southern Village neighborhood, off Hwy. 15/501 South in Chapel Hill)
Registration Fee: Adults: $20 / Children (under 12): $10
* Fee increases as race date approaches. See registration link.
Event Chair: Dr. Charles Burke

UNC Health Care is Helping HHT Patients Locally
Given around 1,700 people in North Carolina alone have HHT, in March 2011, UNC Health Care was pleased to be named the nation’s 12th HHT Center of Excellence by the HHT Foundation International. In the past three years, eight UNC School of Medicine departments, and one School of Dentistry division have partnered to offer comprehensive, multi-disciplinary HHT treatment. UNC Health Care is proud to support the HHT Foundation’s research and awareness efforts.

Cure HHT Team is a grassroots fundraising community with campaigns of all shapes and sizes benefitting The HHT Foundation, International.

For more information about the HHT Foundation please visit www.hht.org

For event related questions, contact Laurie Birdsong (919-966-5469 / laurie_birdsong@med.unc.edu)

Recent Updates

12 Days to Go! Look at all of these great Community Sponsors!

It’s May 6th! That means there’s only 12 days to go before UNC Health Care’s 1st Annual “Cure HHT Team” walk/run 5K on Sunday, May 18th. Don’t wait til race day to sign up! Go to our registration site -- http://www.sportoften.com/events/eventDetails.cfm?pEventId=12873 – and sign up as a “Cure HHT Team” walker or runner today!

As we nail down the details in the...



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Check out Discovery Channel "Mystery Diagnosis" segment that covered HHT!
HHT may be a lesser-known (and unpronounceable!) disorder for many, but fortunately, the medical community is helping increase awareness through patient education. Where the general population misses out, we can thank one broadcast learning show for lending a hand in teaching its viewers about HHT. Check out a recent Discovery Channel “Mystery Diagnosis” segment that covered HHT!



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1 Month To Go!
More than a month away from our first annual “Cure HHT Team” 5K walk/run co-hosted with HHT Foundation International, UNC Health Care is THRILLED to have raised over $1300 in support of HHT research and awareness efforts. Much of our fundraising is tied to registration fees for walkers and runners participating in our May 18th 5K in Chapel Hill. If you can join us for a great event,...

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Registration is open!
Registration for the race is open! Please click on this link to be directed to the race registration page.

If you're not able to join us on race day and would still like to support Cure HHT Team and UNC's efforts to achieve it's goal of raising $10,000 benefitting the HHT Foundation please make a donation on this page.

Want to know more about this event? Check back to our blog often for...

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Recent Donations

Name Amount Comment
Sport Often.com $510.00
Stephan Moll $45.00
Eleonora Viniotis $25.00
Nicholas Galvez $25.00
James Easthom $25.00
Charles Burke, M.D. $542.00
Anonymous Donor $25.00
Bob Dixon $200.00
Tom & Cathie Brubaker $50.00
Anonymous Donor $525.00
Anonymous Donor $480.00
Anonymous Donor $100.00
Joe and Maureen Stavas $100.00 Helping to clog PAVMs and hoping to jog for HHT
Raj Kasthuri $75.00
Lynn Fordham $20.00 Sorry I can't be there in person. Best wishes.
Sarah Thomas $25.00
Lisa Ho $100.00
Mark Weissler $25.00 Have a great walk!
Anonymous Donor $100.00
Lauren Ryan $15.00
Charles Burke $75.00
Anonymous Donor $75.00
Julia Fielding $75.00 Support research and treatment at UNC for patients with a serious disease with with severe deformity
HHT Foundation International, Inc.
HHT Foundation International, Inc. P.O. Box 329 Monkton, MD 21111 USA
laurie_birdsong@med.unc.edu